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Ka 'Aha'ōlelo Moku'āina 'O Hawai'i

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Measure Title: RELATING TO RARE DISEASES.
Report Title: Rare Diseases; Genetic Disorders; Advisory Council; Insurance ($)
Description: Establishes the rare disease advisory council to increase awareness and effective medical intervention for rare diseases. Establishes the rare disease advisory council special fund. Requires DOH and DOE to incorporate the importance of annual physical examinations for children in programs and literature. Amends the insurance code to include coverage for individuals with velocardiofacial syndrome and other genetic disorders. Exempts from cost sharing. Appropriates funds.
Companion:
Package: None
Current Referral: HLT/EDN, CPC, FIN
Introducer(s): MATSUMOTO, CHUN, GARCIA, KILA, LAMOSAO, MIYAKE, PIERICK, TODD, WARD
Act:

Measure Status History

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DateChamberStatus Text
12/8/2025DCarried over to 2026 Regular Session.
1/23/2025HReferred to HLT/EDN, CPC, FIN, referral sheet 3
1/23/2025HIntroduced and Pass First Reading.
1/21/2025HPending introduction.

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