| Measure Title: |
RELATING TO RARE DISEASES.
|
| Report Title: |
Rare Disease Advisory Council; Establishment; DOH; Rare Disease Patients
|
| Description: |
Establishes a Rare Disease Advisory Council within the Department of Health to advise the State on the needs of rare disease patients.
|
| Companion: |
SB1497
|
| Package: |
None
|
| Current Referral: |
HLT, FIN
|
| Introducer(s): |
TAKAYAMA, AMATO, GARRETT, KAHALOA, KEOHOKAPU-LEE LOY, KILA, KONG, LAMOSAO, MARTEN, MIYAKE, MORIKAWA, PERRUSO, SOUZA, TAM, TARNAS, TEMPLO
|
| Act: |
|
| Sort by Date | Chamber | Status Text |
| 1/27/2025 | H | Referred to HLT, FIN, referral sheet 4 |
| 1/23/2025 | H | Introduced and Pass First Reading. |
| 1/22/2025 | H | Pending introduction. |
S = Senate |
H = House |
D = Data Systems |
$ = Appropriation measure |
ConAm = Constitutional Amendment
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HB1288